tag:blogger.com,1999:blog-3969827310966020334.post6992704059324481073..comments2009-12-07T08:51:22.741-08:00Comments on Free Grover T!: Its up and its downFree Grover Thttp://www.blogger.com/profile/05282552655328755080noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-3969827310966020334.post-638333580306794852009-10-27T06:15:12.974-07:002009-10-27T06:15:12.974-07:00so frustrating, can't imagine..
May be check ...so frustrating, can't imagine..<br /><br />May be check out and visit the feeding team at Cincinnati Children's would help? it's one of the top 5 or 10 children's in the nation and was an early aduptor of family-centered care so it NOT like dealing with local hospitals..anyways just wanted to share some ideas..http://www.cincinnatichildrens.org/svc/alpha/f/feed/default.htm | http://www.cincinnatichildrens.org/svc/alpha/d/disabilities/clinical/down-syndrome-center.htm?<br /><br />Wish y'all where in Austin we've been through 5-6 OT's and the one we have know is like a fraking baby whisperer or something (jink) cause since we've seen her Ike's been eating very well. Granted it's a whole different story with Ike;-0<br /><br />Also, I know Grover T does not have a trach (jink) but a lot of parents talk about this on the message boards of http://tracheostomy.com/, plus many of the kiddos have T21 Syn. This may be just a lot of white noise for you but may be you could direct connect with another parent via this site? example threads here: http://www.google.com/search?hl=en&lr=&q=feeding+aversion+site:tracheostomy.com&aq=f&oq=&aqi=<br /><br />good luck!Stevenhttps://www.blogger.com/profile/07478466195361364655noreply@blogger.com